The following is our view in this connection: Once parents have decided to consider stem cell therapy, the next important decision would be which type of stem cells to take and where to undergo the therapy. Stem cell therapy should be considered only for those where despite all conventional rehabilitation, the child continues to remain significantly symptomatic. Complementary treatment such as dietary regulation, supplements, etc. They should also take all the medications advised by the pediatric neurologists/psychiatrists/other physicians to control symptoms such as epilepsy, hyperactivity, etc. (Please note that this is not a substitute for a formal medical advice and all parents are required to do their own due diligence before making this important decision.)Īll parents should initially try the conventional rehabilitative treatment such as occupational therapy, speech therapy, ABA, etc. Informed consent:patients should expect to be informed fully and accurately of the risks, benefits, costs, safety, compensation for injury, investigator conflicts of interest and alternative therapies, as a minimum."īearing this in mind, as a minimum, below are our recommendations to parents looking at the option of stem cell therapy for their children Safety and regulatory history: patients should consider the reputation of the investigator and clinic, as well as the record of disciplinary activities against these entities. They should be encouraged to seek multiple professional opinions and have all questions answered to their satisfaction. Peer review and transparency: consumers of cell therapy medical innovation should evaluate evidence from peer-reviewed publications, professional society presentations and scientific recognition. "The following guidelines are useful in assessing scientific rigor and for differentiating between legitimate cell therapy medical services (including clinical trials and medical innovation) and fraudulent cell therapies." The right to informed consent: patients have a right to a true informed consent process that includes all the elements described above."ĭistinction between legitimate medical stem cell therapy services and fraudulent services: This includes probable side-effects and a truthful record of efficacy. The right to information: patients have the right to an accurate representation regarding the safety and efficacy record of the cell treatment. No entity should withhold this fundamental right unless there is a high probability of harm to the patients. The right to seek treatment: patients and their families/partners have the right to seek treatments for their diseases. "Patients seeking medical treatment for cellular therapies have the following rights that must be respected by healthcare providers and all associated with their care. We are in agreement with the statement made in the white paper published by the International Society for Cellular Therapy with regard to two aspects The following is the view of Autism Connect and is meant to help parents decide:īased on a review of the literature, along with the information available in the public domain and personal discussions with parents who have already taken stem cell therapy for their children, we believe that stem cell therapy definitely offers a potential medical solution to healing those parts of the dysfunctional brain that cause autism.
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